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: 5 yr old daughter w/chronic knee pain... do not know the cause. Need answers!  ( 14108 )

luckygrandma

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I never had a limp either ang and that was one of the reasons why they never saw any obvious reasons for something being wrong with me accept for me complaining of leg pain.  I too mostly just had the pain at night. My knee would get hurting so bad that I couldn't get comfortable to sleep. My daughter did have a limp with her Congenital hip. 

When I was going through this there wasn't computers like there are now where you can research things. It actually made me angry when I read about the Legg Calves Perthes Disease, because I can't believe I was going through such a terrible thing and Doctors, parents, etc didn't know. My life could have been so different if I had been diagnosed as a young child.

Your little Grace is going to be okay becasue you are on the right track. There is definately something wrong and don't let anyone try to tell you different. If they can't find anything with one test tell them you want another and another until they do find the source of the problem. 

ang7880

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luckygrandma, I got your pm but for some reason I got this message when trying to reply... "You are not allowed to send personal messages. "  Anywho...I appreciate your posts and your help.  Any information is greatly appreciated and helps so much. 

Grace had her xrays this morning.  I was hoping to hear something, but of course..I only got "We'll fax the results to your doctor.".... ugh.  We did see the xrays...and at the time, not knowing what to look for [why didn't i research this more before I went?]...I just tried to stick a carbon copy in my brain and get home to compare what I remembered................. the thing is...I can't remember!  I tried asking questions "Does anything look abnormal to you?" type things to the radiology consultants...but they only said "We'll have our radiologist take a look."... they did, yet didn't tell me anything...only said our doctor would get back with us.  I'm so impatient...and with this being the weekend, I'll have to go at least til Monday [probably Tues or Wed]  before I hear anything!




luckygrandma

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anj, I know how frustrating this can be and these so called professionals don't make our life any easier.  I hate the way they keep giving you the brush off and are not taking this more seriously.  I have found over the years that I practically have had to diagnose myself and tell the Doctors what I think is wrong.  It's very frustrating also when you have to wait over a weekend to find out things. I've had this happen so many times.

I had three operations on my right knee in 9 months and it's been 9 months since my TKR and I still can't walk right. I walk stiff legged and there is still a lot of pain. I am over-extending my knee also. Every time I saw the Doctor he said the knee was fine and it is my back causing the pain. He said on my last visit "I'll see you in a year" I drag my leg into his office and he'll see me in a year.
 I DON'T THINK SO!!!!!!I'm sure my back is part of the reason but what does that have to do with not being able to bend my knee.  I suggested going to hot water therapy( the doctor never suggested it). The therapist I'm going to now are baffled but are helping me to work on the problem to get to the bottom iof it.  They feel my hamstrings and muscles are not working together and that I need to strengthen them. They even suggested a brace. I'll try anything at this point. I felt if I got working with therapist again that I would get more attention from the doctor and he would recognize something is wrong. I feel like I'm still trying to convince people and professionals that something is wrong the same way I did when I was a child and they wouldn't listen to me. I'm not a child anymore and this time they will listen. This is not acceptable. I've been through too much to have it end like this.
:o

hustlegritdrive

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ang--

they have recently made it so you have to make 21 posts in order to reply/send any personal messages, thats why you couldnt reply to luckygrandma's messages.  ;)  thats really great that her x-rays have been done. i was told that they aren't allowed to tell you anything that they HAVE to have the radiologist look at it before they can say anything.   ???  i dont know if thats how it works everywhere or what....maybe so.  ::) :P  but your right it is very hard waiting, esp through a weekend. i really hope they call you soon though!! oh actually, i just remembered something. lol. with one of my MRI's we actually called in the next afternoon & asked if the results were ready & they said we could come in & get a copy. so maybe you could call in on monday if your doc doesnt call you & pick up a copy. well i better get going. try & have a great weekend!!  :)

hustlegritdrive
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DennisB

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Ang,

Has a Baker's Cyst been ruled out?

My daughter is 4 and she is suffering from one on the back of her Right knee, the pain she goes though is terrible.
Injured right knee April 06
Grade 2 medial ligament tear
Buckled medial meniscus
80% rupture of ACL
Arthroscopy showed the above
10th August ACLr (hamstring graff)

----------- WHAT LIES AHEAD ? ----------

redtoblack

What did you find out about the X-ray's?

luckygrandma

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I'm anxious to hear about the x-rays too.

ang7880

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Hi all. 

Dennis, Baker's cysts were ruled out. 

Grace's xray results are still unknown to me.  I just got a call from someone in the office of our pediatric clinic saying that we had an appt with an OS at our Children's Hosp on Nov 1st..... 2 weeks away.  I'm not sure if something  abnormal was seen in the xrays and that's why we're getting in to see the OS or if it's just because I requested.  Orthopedics did say that they required her to have xrays before they'd see her.  More waiting.  At least we're moving along.

♥Ang

luckygrandma

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That is wonderful ang. My guess is that they know what it is, but want you to see a specialist to explain it.  When my Legg Perthes was diagnosed and I took my x-rays to my GP he said he wanted to send me to an OS so I'd know what I was facing.  I already knew it was Legg Pethes from the chropractor, but my GP was relucted to give me any more information. If they are not qualified then they will send you to someone who is. You will know soon and then it can be dealt with and your little Grace will not be in pain anymore.    ;)

hustlegritdrive

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aw im so happy for you ang. that is great!! like you said things are moving along. waiting is pretty hard though, but time will fly by & before you know it the apt will be here.  :)  hope your having a good day!!

hustlegritdrive
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ang7880

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Hello everyone.  Thank you all for your support.

My little Gracie went to the OS yesterday and we were given the results of the xrays...which were basically normal.  No sign of perthes....and since she was a breech baby they also looked for deformity of the hip...which there were none.  They said what she's experiencing are growing pains...that the long bones grow first...and the muscles catch up....and that's where Grace is right now.  The muscle that crosses over the back of the knee is hurting.  She said the fact that it's both knees and not just one was a good sign....and the fact that she's quite active during the day and nighttime is when the pain is worst was another.  They gave us some excersises to do each night before bedtime to stretch the muscle in hopes that it helps her get through the night without waking up in pain.  We're sratching the ibuprofen..I dont want to medicate unless absolutely necessary.

However, they did find a anomality in the xray...unrelated to her knees...but something that may or may not cause some lower back pain later on in life.  She has sacralization of "LR" ....anyway...where the right side of her spine is attached to her sacrum.  At least we learned something of it and I don't have to worry about worse things anymore. 

She said there was no reason she could see to look into her problem any further...nothing that warranted poking of needles or that sort.....but that if in 1-2 years she's still having problems we can start looking at other possibilities.

Thanks again to all of you!
Angela

luckygrandma

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Hi Anj, Then there really is such a thing as growing pains. I've just never heard of them affecting a child so much. Maybe that is why when I was growing up that is what they kept telling my parents, because the symptoms are very similiar to what I went through.

If the Doctors are right then Grace should gradually outgrow them. At  least you are on the right track and don't feel so helpless and have an idea what to do for her.  I'm really quite relieved for you, and it is so great that that Leg Perthes has been ruled out as that is no fun.  I would very much like to keep in touch and know how she is doing, if you want to let me know by e-mail that would be fine.    :-*
« : November 05, 2006, 01:16:42 AM luckygrandma »

luckygrandma

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Hi anj, How is your daughter doing.

shootingpain

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I feel for your family. My daughter started with those exact pains at about 2years old. She would wake screaming in pain. Nothing would give total releif, but there was some by rubbing icy hot on top, and around entire area. Many Dr. test. I was told, and noew tend to belief it was growing pains. My daughter was 10 lbs. 12 oz. at birth always stayed at about 165 growthpercentile. She was ona 5 year growth spirt. from about 2 on she was more mature than any children in her grade, and several ahead. Her pains semm to lesson about 7or8, but didn't stop until about 10 sorry. I hear there are good natural remedies now.

Jomsep

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Hi Angela, not sure if you’ll see this since this thread was so long ago. But my 5 year old daughter is having a similar situation to your daughter.  I would like to know what stretches you were doing with her and if the stretches helped. Thanks, Jodi















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